My Life, My Rules: My Style, My Attitude

The book is inspired by me.

I suddenly fell ill when, I was 12 years old and discovered that I had a rare genetic disorder that affects me physically at most.

I ran, jumped, danced… grew up like any “normal” kid… like a tom-boy with shorts and a t-shirt climbing trees and full of mischief. But, I loved dressing up and wearing high-heeled shoes and parading around the house. When I was 12 years old, my whole life sort of froze. I was angry, sad and depressed… and the next year was high school for me… and going to high school is a daunting process for any child and it can make or break you.

I focused mainly on my 5 years at high school, growing up. I experienced a lot more than most kids my age and had more challenges and obstacles along the way. I take the reader on a journey through my life and hopefully you will understand my feelings and me better. I survived losing myself on so many levels but I came back stronger, mentally. It built my character and taught me life lessons and skills.

People always ask: “given the opportunity, would I go back and do things differently?”
My response is always “No, what happened to me is what made me into the person I am today and I don’t want to change that!”

I grew up like any child but am now living life as a “disabled” person. I would call myself “physically challenged” that makes more sense to me. No one can truly say they “accept” what has happened to them, and neither can I…

But, I am living “my” life as a quadriplegic!